- 小繊維ニューロパシー(Small fibre neuropathy)
My ID docs called a neurologist in our group, Dr.
He saw me on December 29th in which he said this could potentially be guillain barre or it could just be a allergy reaction, both due to the covid vaccine.
He did a full evaluation and found that I had neuropathic pain in my right hand and right foot.
As of the 29th, the numbness and tingling was back to my right foot also and would come and go.
He gave me a shot of decadron 1g (even though it would blunt my antibody titer response to the vaccine) and gave me extended release gabapentin to start on the evening of the 29th.
He also had me start a Medrol dose pack starting on the 30th (today).
did a STAT EMG which came back fairly normal.
He can almost definitively say this is not guillain barre although he still concerned about some of the more rare de-myelinating brain disorders caused from vaccines.
he said the most likely on the differential is a small fiber peripheral neuropathy stimulated from the lipid moiety that encompasses the messenger RNA of the mRNA vaccine.
He told me to continue the prescribed meds and he is going to do a biopsy on Monday to try to diagnose the small fiber peripheral neuropathy.
Received my vaccine on December 22nd, 2020 at around 830 Am.
That afternoon, about 3 PM, I started to have a reaction.
It started with tingling/numbness in my right hand which progressed up my arm into my elbow.
About 10 minutes later, it then progressed into my right foot, and my left foot.
About 10 minutes after that, I started to get flushed and a neck rash (diagnosed from Dr.
I took Benadryl and Ibuprofen 800mg PO every 6 hours for the next 24 hours.
The numbness in my right foot and left foot along with the flushness went away a couple hours later.
Although, the numbness in my right hand never went away.
It came and went for the next 4 days until December 27th and 28th when it started getting worse.
On December 28th evening, it got so bad that I was debating going to the emergency room around 1 am.
The numbness and tingling was in my right hand and started shooting up my arm.
The nerve pain around my wrist was unbearable.
I finally fell asleep and the next morning, it was not nearly as bad, but was still there.
The numbness and tingling moved from my right hand mainly to right hand, right foot, right leg, left foot and left hand today (12-30-2020).